Friday, February 12, 2010

CHD - Adrienne and Cali's Story

Almost six  months ago my friend and neighbor Adrienne had her first baby, a little girl named Cali. Her birth was different than most because Adrienne and Thomas knew that Cali would be born with a congenital heart defect. A team was assembled to help Cali receive the critically important attention and surgeries she would need to survive. Even though heroic efforts were made, sweet baby Cali lived only a week. You can read more about Cali's brief sojourn on this earth here.

Adrienne involved herself in the cause of congenital heart defect (CHD) awareness, and through her efforts, February 7th-14th has been declared CHD Awareness Week in the state of Utah.

In recognition of CHD, Adrienne suggested a few ways to get involved:

Talk to friends, neighbours about your experience with CHD
Give blood (Cali received many blood transfusions)
Volunteer at a local Children's Hospital
Donate financially to one of the many worthy organizations here.
Buy a CHD Awareness Week Pin for $5 at & wear it!
Change your Facebook profile picture to one of the CHD Awareness Stock Photos
Wear red for CHD week and tell others why you're wearing it
Use your Facebook/ Twitter Status to talk about CHD Awareness
Become friends with CHD Awareness Week 2010 (Official) on Facebook
Hand out Pamphlets on CHDs (contact me if you'd like some!)
Wear a CHD Awareness sticker (Contact me if you'd like some!)
If you participated in the Heart Walk in September, you could wear your Tshirt!
If you're in Utah:
Paul Cardall benefit concert 

The Paul Cardall benefit concert will be held on Monday, February 15th, 2010, 7:30pm at Abravanel Hall in Salt Lake.

Organizing the declaration of CHD Week is such an amazing accomplishment, I'm so proud to say I know Adrienne! To take such a devastating personal tragedy and create something positive that transcends the experience is incredibly inspiring.


rookie cookie said...

My cousin Lindsay's little girl Marin was born with a congenital heart defect as well. Marin is almost 4 and has had 3 open heart surgeries so far. This week, Linds has unprivatized her blog so people can read Marin's story. She is one tough little girl. Read it:

Adrienne Orrock said...

Thanks Carina!

Emily said...

I am truly inspired by women who take a difficult, life-altering, "I would never make it through that" situation and turn around and help make a difference in the world. Thank you for featuring her and her cause!

Nicole said...

Adrienne and Thomas are such a great inspiration to me. Not only are they family (which puts them high in the LOVE category for me), but they have maintained such an optimistic outlook despite such heartbreaking circumstances. I had another good friend and his wife lose their son to HLHS only a few short weeks after Cali returned to her Heavenly Father. I am so proud of all that has been accomplished to make CHD Week a reality!

Amy said...

I hope you don't mind I was blog stalking and saw the CHD, so I had to read. I have a 6 year old with a CHD and we have been talking a lot about it on twitter, as well as some other moms that I know with CHD you can read our stories if you are interested at Those little heart babies are blessings and I'm grateful that others are sharing their support and love.

Rynell said...

You are right, very inspiring. Thanks for sharing this.